Relapse for SMZL

Good morning Debbie Roxyrock and as my oldest granddaughter would say ‘pants grandad’. Sorry to hear that a Relapse has been confirmed.

Unfortunately this can happen and indeed happened to me often in my early years with my longest remission also being 9 months. But this can still be done as it’s often all about getting the correct combination of treatments lined up to do the job correctly. Sometimes there is a little trial and error involved.

I have not had the R&B combo but from reading others comments on here and on the Lymphoma Action support platforms R&B is very effective as a second line treatment for SMZL and is very well tolerated.

Let’s see if any of the group members have any experience to bring to the table ((hugs))

Hi, I relapsed from follicular lymphoma quickly too, and then did R-Bendamustine. It was okay. No hair loss, some nausea. Had a PET scan after the second cycle because they wanted to check that it was just follicular and not a high grade version as they thought it might be. In fact it had worked a treat and I was back in remission. I still did another four cycles. Well, except we cut the last one short with just the ritux and half the benda on day one with no day two which pleased me greatly, because my platelets took a dip. I'm now doing ritux every 12 weeks for two years for maintenance. I've just, last week, had another PET scan and am still in remission. Good luck.