So confused & don’t want to be wasting time

FormerMember
FormerMember
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My journey started in 2015 with nhl fl stage 1a and have been in remission. Breast cancer followed in 2017 stage 1 again in remission. Both treated by surgery and rt.

Fast forward to this year a couple of “lumps” checked out lipoma on back and surgical hernia (from gall bladder surgery, under ribs in the middle). I have been suffering with belly issues for quite a while now and dr referred me to     Gastric specialist given I have no appetite, losing weight and constantly tired. Dr also arranged a number of blood tests as she could feel a small node in my neck. I subsequently had a colonoscopy which is clear of anything serious but I do have diverticula disease (good to know) Also had ct scan for which waiting for results.

so prior to the ct scan I had a call from the dr who advised blood tests all good but lhd was outside norm and she was talking to haematology given that they have raised since my last blood test 2 years ago (pandemic). The response is to wait for GI investigation then look at referral. I think (going by what dr said “they should pick up anything untoward on ct for chest, abdomen and pelvis”

so I guess I’m in limbo but getting to point,  is such a small lump really worth being referred for? Sorry I just feel that I’ve had so many checks I really feel guilty of wasting time.

apologies for ramble, I do find it helps to vent.

  • Hi Sarah  this is a good place to vent and absolutely not wasting anyone’s time.

    I have had so many false alarm checks over my 22 years but also checks that turned out to be an ‘issue’ I could have left some of the ‘issue’ ones but was told very clearly that although I know my body and my type of NHL very well I did not know everything.

    One of these ‘will I leave it issues’ was the starting point for my big gun treatments between late 2013 and mid 2016….. glad I did not leave that one.

    So go with the flow, the fact that you are actually being looked after well is amazing…… not the story I am hearing from many others having to fight to be heard as our NHS struggles to cope.

    ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • FormerMember
    FormerMember in reply to Thehighlander

    Hi Mike, thanks for taking the time to respond. I guess I know you’re right but in my situation I’m constantly told by family you’ll be fine it’s nothing sinister, not that I mind that being said and hope to be the case. It’s just that this prays on my mind of wasting peoples time. But I will go with the flow as better to be safe. My dr is lovely and yes getting great diagnostic treatment. The discovery of diverticulitis certainly explains a lot.

    once again thank you Slight smile

  • You're never wasting anyone's time. It's what the system is there for. Once you've got a history of something like lymphoma they will always err on the side of caution and check everything out. And quite right too.