New here. Hello.

Sorry I can't help with your type of cancer, the wife has breast cancer that has spread and spread and spread.  The only shadow of hope that I can give you is that while we were getting the 10 minute telephone consultations things were progressing as the consultants expected.  When they suggested that we should come in for a face to face consultation, the news wasn't as good as previously.

When my wife's liver started to have problems it did give her quite a lot of pain, then again cancer in liver can lead to fluid build up that will also cause pain and without medical training you are unlikely to be able to tell the difference.  I must point out that I am not medically trained, just living with a lass who is doing her best to cope with the effects of this awful disease. 

Hi thank you for your reply. I am so sorry to hear about your wife’s cancer. Once on this Cancer treadmill it never seems to be an easy path to travel on. I hope your wife remains healthy for the longest possible time and that the effects are not too much for her at anytime.   

most of what I know about this Cancer I have discovered through reading various medical or other articles.  None of it is reassuring. I guess I just have to roll with whatever this brings to my plate and hope for the best. Easier said then done sometimes. 
wishing you and your wife well x 

Hi 

I have NET, originated in my pancreas but has now sperad to multiple places including my liver.  This has all happened very fast for me as i was only diagnosed before Christmas. However, i too have been diagnosed as terminal, i was given 6 months. Ive had chemotherapy to give me more time and im currently waiting to see if im suitable for further treatment.

Unfortunately when i was researching i too found that once its in the liver life expectancy isnt long. I too experience liver pain and when i asked my consultant she said it was quite common.

I have been lucky enough to meet my consultant. Do you have support from palliative nurses or numbers to contact at the hospital? Ive found them very helpful when ive needed them.

All of this is my experience and like you said everyone is individual. Remember to try to stay positive and enjoy each day!!

The palliative care nurse has been fantastic, the GPs surgery was stalling when it came to pain meds, the nurse managed to get an instant response were me begging didn't. The ward are very busy so phoning them can be hit and miss.  Contacting the consultants - you have to be joking right!. SWMBO is in the Christie - no visiting, we were supposed to see the consultant tomorrow together, apparently I will no longer be allowed.  Furious is an understatement.  They have increased her pain killers by 400% in the last week, and it is still taking additional injections to control the pain, she is having difficulty remembering conversations from 15 minutes ago, what chance an important discussion with the consultant.  We have a plan, if I don't get permission, she is going to sign herself out  - whats the worst that can happen?, she is in pain and vomiting several times a day quality of life = zero. Chest filling with around 5 litres of fluid a week and no plan as far as we can see.

Finding it difficult to stay positive when visiting is banned, I have no idea what is going on, and the wife is obviously suffering.