Breast cancer with Neuroendocrine characteristics

Hello

Im so sorry to hear your diagnosis, I don’t recall reading about anyone on this site with a Breast NET, other than Metastasis. Did you use the search box??

Whilst Macmillan is very helpful for more general cancers, and questions, NETs are very complex. There is a website netpatientfoundation.org which is NET specific and you should find some  answers...Please don’t hesitate if you have any other questions 

Best wishes

Hi there,

I have been diagnosed with primary breast NET. Iva gone thru surgery last week and awaiting some more tests to identify the right therapy 

Hi 

Sorry to see you joining the Mac Community and reading about your Breast NET 

Net Patient Foundation UK Org produce a Breast NET information leaflet which I can place a link to below...

https://www.netpatientfoundation.org/wp-content/uploads/Breast-Factsheet.pdf

If you feel it may be helpful to you there is a very active (and friendly) Breast Group here you can check out and join if you need advice and/or support from the breast surgery ladies regarding surgery recovery or any further treatments you may require.

Hope this is of some help with this very uncommon diagnosis, G n' J

Hiya,

I was diagnosed with primary poorly differentiated neuroendocrine breast cancer in March 2015, had a wide local excision, chemo ( TAC)  and radiotherapy. Suffered a lot with long term effects of treatment initially.... fatigue, aching joints yada yada but finally down to bare minimum. Hopefully will get discharged in jan following my mammogram in nov.

Not much info out there just take everything as it comes and don't be googling it doesn't help xx