Hello. Since June I have been bouncing between doctors trying figure out what is wrong. I started with throbbing hip/groin pain that wakes me up at night. Then I started experiencing sharp back/rib pain and pain on the top of my foot that felt as though my bones would break if I put too much pressure on it. I went to my PCP who was about to retire at the time. He sent me for a hip x-ray as he thought maybe I would need a hip replacement. X-ray normal, referred to a rheumatologist as my entire family has some sort of autoimmune disease. Rheumatologist did back xrays, hip mri and bone scan, all of which appeared normal. My hip MRI did show 2 areas of subchondral edema one on each hip. All bloodwork came back normal, no inflammation. He thought maybe I should see an orthopedic dr but I refused since all of my imaging came back normal.
It's now the end of August and I'm still experiencing pain. Forget to mention I have been running a low grade fever, 99.5-99.9 for about two years off and on with no other symptoms. Assumed it was perimenopause (I'm 51) as I had no other signs of illness. I decided to see my new PCP who is wonderful. He did bloodwork and found that I had IGg and Kappa abnormal proteins in my bloodwork and also in my urine which he felt was an antibiotic. Following completion of the antibiotic my next urine was normal. At that time he also ran a Kappa/lambda ratio which was normal. He has referred me to hematology with a diagnosis of MGUS (my father also has this).
I guess I'm wondering is do I have MGUS with the last bloodwork being normal and given my symptoms, should I worry about myeloma? Also, is it hereditary? Do the cysts/edema on my hip bones count as lesions?
Any thoughts are greatly appreciated.
Hi Tlc1210 and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about ongoing issues.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013).
I am assuming that you are not in the UK due to using the term PCP. The Macmillan Community is a UK based support platform so there may be some differences in how the medical system woks.
It is good that your PCP has referred you to a Haematologist as honestly they are the only people who can answer your questions at the end of your post
There are a few active members at the moment so let’s look for them to pick up on your post.
