hello, new to the group.

Hi again Rushy  and a warm welcome across to this corner of the Community.

I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of living with an incurable blood cancer.

There are a few active members at the moment so let’s look for them to pick up on your post. Do click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.

Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.

For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.

Always around to help more or just to chat.

Hi. Rusty.    Vespa here.   Kevin       I understand 100% what you mean but I am so glad I found it.    Mike. Gives great sound advice.   I am also newly diagnosed with. MM.  June this year.  Now just started cycle 2 treatment.    Hrd part was family.    Informing them.  The. Macmillan books helped me so much. I ordered them.  Made a donation to cover costs and  helped my family understand what is happening to dad.  Having twosons in Australia it was not an easy thing to do via FaceTime.      Please keep people here updated.   We are all here to help you.   Some way ahead of me    But you will only get genuine support. Eperience to help you on your journey to remission.     It’s very personal to you the patient and your partner and family.     BTW.     male.  66 years ( young)   Married. 43 years and I need her mor than ever ️        Father to 4.  Grandfather to 1. And 1 on the way.       Kevin.      Just words. But also with understanding.