Hey guys, Vixon69, I am 53 and I was diagnosed through my annual Diabetic blood work May 2021. Something to do with a marker that they had now started looking for in blood work, that until this point they didn't before, then they checked all my previous results and found I had always had the same marker in my blood work.
Anyway they said I was not anemic, how did I feel in myself, said odd they should ask that because for the past 6 weeks I had not felt myself The Hemo doctor said 'but you can't explain why!' yes I said hence why I have not gone to the GP!!
Anyway in April my Hemo results they said I am now anemic and will send me for another Bone Marrow test which I had done and they would give me the results, which I kinda knew the outcome would be (your going to be on medication). Anyway got the phone call on 18th, your Protien is high we will be starting you on meds and weekly injections (NOT sure if this means I am now Multiple or still Smouldering) but next week I see the cancer nurse for my meds.
Then I will also repeat the full body x ray and MRi just to ensure no fractures. As most of you know, you can go through life with fractures (living with the pain) I do have back pain, started 2 - 3
onths ago Hemo booked me in for x ray came back with Scoliosis due to my severe arthritis in my right knee, so I guess it's just that kicking in again whatconcernswhatconcerns me (sorry doing this on my phone so it repeats) is my part time job. Because I have to get a bus to the next town to my weekly hospital appointments, I'm going to be shattered and I don't know how the medication will affect me, I already take 14 tablets a day so I think I will have to get a fit note for the first 4 weeks as I work for vunerable clients and it's not fair on them if I make mistakes. I think would be the sensible thing to do, any advice?
Hi again Vixon and well done navigating to this corner of the Community.
I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of this journey well.
Let’s look for the group members to pick up on your post. There are a number of active group members at the moment so why not click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups….. the one I attend does have a few folks with Myeloma in it so worth checking.
Always around to help more or just to chat.
Hey Mike, Wow!! I have always said, I myself am not going through anything? Compared to many others!! 
 It does make me chuckle that mine is all bone issues osteoarthritis /myeloma at least my body kept consistency . Please don't think that I am laughing at other people with any of the conditions, I am not. Just me. Mike you and everyone else are amazing. Thank you for accepting me on here, I feel humbled. Thanks.
Hi Vixon
Everyone’s journey have their own stories and I continually am amazed at how people navigate the unwanted journey.
Amongst many other health issues (see my full story in the link below) I was diagnosed in 2010 with Thoratic & Lumber Spondylosis - Spinal Osteoarthritis so in some way I appreciate pain …… but amazingly following my 2 Stem Cell Transplants I have no more back pain….. it’s amazing what treatments can do 
Although my journey is rather different but I am still here to chat and help out ((hugs))
