Hello

Hi Janey,

thanks for your email and really sorry to hear you’re back on chemo. I think that is my biggest fear that I’ll go through transplant and be back on chemo. 

The first year on chemo was dreadful and I wasn’t sure I could cope and I totally understand you feel like you have a gun to your head. 

id be interested to know your experience of SCT and how you coped and what things I need to be aware of, and also how your husband coped.

thanks

Adrian

Hi

I had my SCT at Sheffield Hallamshire Hospital. I wasnt allowed visitors due to covid. I was quite ill afterwards with the dreaded S&D and didnt want to eat much. Had lots of ice lollies which were nice

I refused a 2nd SCT as I only got 18mths remission & was told the 2nd transplant would give me less

Good luck on your journey 

Janey x

Hi,

I think that’s my biggest fear is going through everything and the remission isn’t as long as expected. If I’m honest I’m still in two minds……

Hope things work out for you 

Adrian

Adrian, it’s all about the bigger picture and what the overall outlooking is. As I have said before I have a different blood cancer but I was given a few years on the clock with SCT the only hope, my first Allo failed within 6 months but I seven and half years out from my second Allo and doing great…… and over the past 7 years two new treatments for my rare condition have come on line so I now have a few fall backs.