Hello,
I was diagnosed with myeloma in December 2020. The first year was pretty relentless but thankfully things settled down after that. I am now waiting for a stem cell transplant at Kings College Hospital. Currently the harvest is scheduled for 22nd/23rd June with the transplant to follow 4-6 weeks later.
I’d really welcome any advice on coping with the transplant not just for me but also for my wife and children.
Hi Hally24 and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about the journey your diagnosis.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of this journey well……. especially as I have had 2 Allo (donor) Stem Cell Transplants (SCT)
There are a few members in the group who have navigated SCT but there are more in our general Stem cell transplant support group as this is the place that people from different blood cancers come together and support each other through the SCT process.
Do join the SCT group and look through the various discussions, you may want to put up your own thread and you can also hit group members names to see their stories (if they have put anything into their profiles)
My long story short - in late 2013 my condition became very aggressive so the only way forward was some very strong chemo and SCT and this had to work as I had a few years on the clock if the plan did not work.
My first SCT was June 2014 but that failed within 6 months my second SCT was in Oct 2015 and I remain in remission to this day living a great life.
Always around on here or in the SCT group to chat.
