Adam32 Hello to all

Hi Adam

so sorry to hear you are terrified of the blood tests, what treatments have you had? I have had my stc and am currently going through my second course of treatment for 2 months then go onto maintenance treatment at least that’s what I’m hoping for!!! 

Thanks for  your speedy response

Had Thaliomide along with Steroids and other medication that memory has faded.

Went into Remission that lasted a few Months.

Therafter Myeloma flared up again, went o courses of Chemotherapy whose names escape me albeit they were very debilitating. 

Hospital had to stop Chemotherapy as I contracted Double Puemonia which incapacitated me for approx five Months and the Medics told me it was touch and go as I was on oxygen for seventeen days and was given the non resuscitation option.

What dismayed me Hospital have 24/7 emergency line which I contacted to no avail. It was eight Days later I was admitted to Hospital in a distressed condition. 

This episode affected my confidence. 

I accept we are all human and mistakes can happen

Gosh you have been through the mill no wonder you have lost confidence in it all. Have you had a stem cell transplant? X

Many thanks for your response 

After consultation with Haematologist when first diagnosed. 

I decided we would go down a path that did not include stem cell transplant in my treatment. 

This course included Thalidomide and other Meds after a five Months went into Remission which lasted for approx. Six Months...

Went into Relapse and went onto Chemotherapy .

In between had Puemonia. 

In Remission at 

Moment albeit have peripheral Neuropathy 

Hi , like Adam I wasn't sure about SCT and it wasn't untill probably cycle 3 of the DVTD that I decided to have it .Here I am in hospital now 16 days post transplant and looking to go home next week , fingers crossed .

Every one is different and knowone will tell you what to do   At this moment in time I'm glad I have been given the opportunity to have the transplant  and I dot regret changing my mind . 

Wishing  you all the best .

Sue 

Hi Again

that neuropathy is a pain in the butt thankfully mine has stopped! I think that’s down to me being on pregablin for pain amongst other things. 
Are you able to go for STC now or would you still not consider it? 

Probably a fair bit down the road with other treatments 

Would consider all options bearing in mind I am approaching 78

Hello Notgivigup

How are you doing now after your SCT? You were planting spring bulbs the last post I had with you. Did they come to flourish?  Best Wishes x

Hi Adam. There is an anaesthetic cream that numbs the area. I think it’s called Emla cream. You could try speaking to one of your health professionals to see if it’s an option for you. Best Wishes

Hi again!! Anemones have come up beautifully but lily of the valleys not yet but I think they’re later on. 
I’m ok on my second and last month of treatment it makes me ache all over, just got to touch my skin and it hurts  all that pregablin and fentanyl doesn’t stop the pain. Did you have this or anyone else?? Anyhow another 3 weeks to go then on maintenance I hope xx