hello my wife diagnosed with mm

Hello there, I really feel for you both! I was diagnosed in June and have gone through 4 cycles of treatment and am going through a SCT in January/ February. My diagnosis came about because after a couple of months of horrible back ache an MRI showed a fractured spine blood tests followed and the diagnosis. My palliative nurses have changed my meds from morphine to pregablin and patches with a bottle of Oxydone to swig from through the day. A heat pad helps my back and can’t do any harm I’ve been told. The palliative nurses are brilliant with the meds and ring me every couple of days to change dosage until we get it right. How was your wife diagnosed if you don’t mind me asking? X 

thankyou for your reply .my wife came home 1 day with a bad back  so went to the doctors and had a blood test and it went on from there with the diagnosis 

Hopefully it’s been caught early then, mine was allegedly a kidney infection, followed by muscle pains I was crawling out of my bed 3 months were wasted before I got the blood tests. I hope she gets her pain relief sorted soon x

wow sounds like you suffered for quite a while .thankyou so much for taking the time to answer my questions . my wife starts her treatment  on the fri the 30th  so im looking forward to getting her back on her feet 

Hi Spreader,

My husband was diagnosed two years ago, with very advanced MM (80%). He was in excruciating pain with three of his vertebrae breaking and a compressed spine. He couldn’t pull himself out of the armchair, let alone walk across the room without help. He went into hospital when the COVID was at its worst and inevitably caught it, it was touch and go but he survived and came home, recovering just in time to start his chemo, two months later than it should have been. He had a SCT just over a year ago and this summer we have been travelling around the south of England towing a caravan we bought, which we decided was the only ‘safe’ option we had to steer clear of viruses and also enjoy ourselves…. We have had a ball for six months! My husband went from barely being able to walk to hiking for miles. He has morphine in tablet form, Oramorph as and when he needs it with a top up of paracetamol, to keep the pain at bay. There is hope to life getting better and sunny days in front, keep going forward with lots of laughs and plenty of love from friends and family. One of my friends said to me ‘don’t refuse any help that is offered, from whatever direction it comes from’, they were very wise words and I needed them. I’m very independent and found it difficult to accept help, but am now so grateful to have the support when I need it as the process can be very tough. 

I hope your wife gets some relief from the pain and I hope you have someone you can turn to when you need a bit of loving care yourself. Lots of hugs, Marion xx  

Hello Marion

it is wonderful to hear your husbands story so thank you for sharing. I am dreading my SCT the only thing in my life I have been afraid of as they paint such a gloomy picture of all the side effects. How did your husband find it? I too am very independent and live alone but you’re right take everything you can get! My daughters keep an eye on me and stay over but it’s lonely when they have gone as they have to go to work and look after their children etc. 
thank you for giving me a boost with your story xx

Hi Again

she will be on the road to recovery!! I hope all goes well, keep in touch xx Anita