New to the group

Hello Dido22. I was diagnosed last May after what I thought was a pulled muscle in my back. Six weeks of what I thought was a pulled muscle I could hardly walk. This led to an MRI scan which showed a crush fracture of my thoracic 7 vertebrae. I was admitted for a CT scan an a bone biopsy to confirm it was Myeloma. The bone biopsy is very uncomfortable but tolerable and the CT scan was easy. A few weeks down the line I had Chemotherapy ( Velcade ) Thalidomide and steroids. The Chemo regime was ok too….. a bit fatigued and a bit of pins and needles in my feet at night but nothing too bad. I hated the steroids though!! They gave me terrible jitters an I had difficulty sleeping my brain felt “ wired up “  then I had radiotherapy to my back. This was done five days in a row and again it was ok. I was tired every day after each session but that could have been because I travelled in an ambulance an hour each way. Around April this year I’ve had my stem cells harvested and I am waiting for a Stem Cell Transplant. The shock of my diagnosis was probably the worst experience to date and it did take me a few months to come to terms with it. My advice to you and your Dad is …. Have a list of questions for your next appointment. Write everything down what symptoms he is having now and up until then. Ask for the name of the Clinical Nurse specialist in Haematology they really are invaluable. There are many people they can involve your Dad with. The Pain team Dietitians Physios ect.       This is where I am to date. I hope you Dad gets on ok with his next investigations.  If you have any further questions I would be happy to help. Everyone is different and this is just my experience    I wish you all well xx