Hello ,new here.

Hi . I just dropped by and noticed you've not had a reply to your post as yet. I'm sorry to read your wife is feeling down after having her stem cell transplant. Can you arrange to do a zoom call, that may cheer her up a little.

I have a different type of cancer but by my answering it'll "bump" your post back up the top of the listings so hopefully someone will be along soon to reply.

I've also flagged greg777, he's the Community Champion for this group so no doubt he'll be along to answer as well.

Sending you and you wife hugs, B xx

Thank you for your kind words, sometimes I feel that people forget that the family are going through it as much  as the person who has cancer

Hi rockgoddessuk, 

I am really sorry to read about how your wife is doing, has her medical team given you any indication about when she might be able to leave hospital? I remember the period immediately post transplant as being particularly tough and I found it helpful to know what I was working towards in terms of getting home, and even if there is no straight answer at this stage, at least getting some sort of update as to what the way forward is might help to boost mood?

Here’s hoping you get some positive developments soon.

Greg

Hello rockgoddessuk, I'm very sorry to hear about your wife.

My Dad has just been diagnosed and is currently in hospital again.  He is so down and I know family is such an important thing for well-being for him and for us at home. We are all on eggshells, not knowing if we are saying or doing the right thing. 

Alas what I wanted to suggest to you as I got one for my parents,  is a Facebook portal.

I had bought a TV one for my parents at Christmas and one for my own home. I'll admit I'm still getting to grips with all the fun stuff on it!

When my Dad first went in to hospital in mid May we got the one person only visiting policy that could be cancelled at any time. He was in for 5 weeks 3 days and it was awful. We are a big family and we all wanted to see him. So I bought him a portal picture frame for while he was in hospital.

The day we got the news I had to tell my 7 siblings. Once we all adjusted our composure we were able to video call him and put him on a large screen TV including a sibling in USA. 

He can video call us if and when he feels up to it. But while he is alone in his hospital room the portal displays photos of all of us. Happy ones, funny ones etc. Things to try and make him smile.

I see your post was nearly 2 weeks ago so perhaps your wife is home. Alas, hopefully my post helps someone else. XX 

Hi Tearful How is your Dad doing at the moment? I sincerely hope he has got ease from his pain xx

Hi Mardan , 

How are you doing!? 

Thank you for asking after my Dad. He has lost 3 stone of fluid! They stopped his treatment for 4 weeks to give him a break. His treatment started again just last week but without the Pregabalin. 

He's managing fairly ok compared to few weeks ago but still not great. They are going to keep a closer eye on him through this cycle of treatment with a face to face triage the day before treatment. 

His shoulder is still giving him pain now too. Doc said there is a lesion there and they will see how things go for another week then might refer him for radiotherapy.

Xx

Hello Tearful.  I am just ok at the moment. I am on my 2nd cycle of oral Chemo and finish it next week. Hopefully my bloods will be normal enough to go ahead for transplant.  I can’t believe how your poor Dad must have suffered with all that fluid!! No wonder he was miserable. It’s good to take a break and I’m sure it won’t impact on his treatment too much. I’m sorry he still has that awful shoulder pain and I hope he gets radiotherapy for it because it really helped my excruciating back pain practically within days. Please give him my regards and try to stay strong…. Difficult as it is. I sincerely hope things get better for you all xxx