Hi, I’m new to this forum. My mum has a diagnosis of Myeloma. I’m worried about her and not sure how to help. She’s lost a lot of weight and is pretty frail now. She’s 75. Her sister died of Myeloma 2 years ago.
Phew,what a shock not just for you mum but you as well.
I assume lots has changed probably since your Aunty had it and though that gives you lots of information please remember that is not the same for your mum as we are all different.
my wife has multi myeloma which became known to us last October. We had never heard it before and with the help and support of gregg who’s such a fabulous help we are getting use to it.
Keep coming back on here for support as sometimes you hear something and it resonates and you go away feeling a little better.
I really appreciate you taking the time to contact me. It is a shock for us all as although we knew something was wrong, the chances of it being Myeloma seemed so unlikely after my Auntie although the symptoms fitted. One of the frustrations is not having information from my mum ad she doesn’t ask or retain information she has been given by the doctors. I still suspect she is quite far advanced as she has lost a lot of weight and seems so frail and suddenly elderly. She also has osteoporosis which I’m wondering has masked the symptoms. It’s hard to know. Although she is having chemotherapy which I think she perhaps wouldn’t be given if there was no chance of it helping. I’m sorry to hear about your wife, and hope she is doing well. I’m glad you are getting support too, it must be hard for you. I hadn’t heard of Myeloma either until my auntie.
Well Good Morning. I forgot to tell you that the similarities tween your mum and my wife are there.
anita lost over 3st. She couldn’t keep the tablets down no matter how many anti sickness tables I gave.
food was a gt no no. No appetite at all and sickness as well all the time. She disappeared in front of me as I bet your mum is to you. Then a pressure sore on her bum.
anita initially had what to us was the scariest thing which I haven’t seen on here but all her bone in her back and ribs etc moved. It was like watching a slow motion film of a petal opening. Course, this is weird myeloma life and that doesn’t disappear so she is left with a hump on her bk.
now for some better news, she got through the sickness and tablet taking and within 3mths they weren’t able to find cancer in her blood or marrow and it’s 6mths since then…hoping this gives you some hope into seeing your mum being frail.
a dietitian helped and she was put on ensure to act as a meal replacement and slowly the sickness stopped and she began to eat. She’s always been a healthy eater so harder to put on all the weight she’s lost so the dietitian again gave us the “shots x4 “ as day and still 1 ensure and slowly she’s putting on weight.
I tell you all this to give you a tiny glimpse of what can happen for the good for your mum.
I hate to say it but I still live in fear of losing her but just wait to your mum starts getting that little bit better it gives you time to catch up on your own feelings and worries. msg as often as you like as support sometimes is so hard to find.
This does sound family. She is shrinking, although because I live on the opposite side of the country to her, perhaps the difference is more noticeable to me. She is really struggling to eat and have the shake drink she has been given. I can’t tell you how much hope you’ve given me, hearing about your wife’s journey through this. I’m delighted she is doing so well. Thanks again, it is so nice to have someone who understands.
