I don’t have any pearls of wisdom unfortunately, but just wanted to say hello. I must have had MGUS at some point but I didn’t know and went straight to myeloma. I’m not sure what I would have thought if I’d known. I know it is a small percentage of MGUS cases that turn into myeloma, I think I would have clung onto that, but certainly it would have been a big shock and would have taken time to process, so please take care of yourself during this time.
ive recently been diagnosed with MGUS and I guess I’m struggling to deal with it. I appreciate that in a lot of cases don’t turn into myeloma but it’s always in the back of my mind.... always. I’ve got into a bit of self district mode as I don’t where I am with this diagnosis.
I have just been diagnosed with mgus, and I've not really had any information as to what this really means . I've had CT scans and blood tests and been told I will need blood tests every six months or so but that's it . I just want to know what it is for other people with same
