New waiting on test results

all i can say is dont be scared  like you say they can work wonders nowadays with drugs .my wife was diagnosed 5 weeks ago and shes currently on her 3rd week of chemo .yes its tough but there is so much help out there should  the worst happen .what sort of pain are you having ?

Hi thank you for your kind message hope your wife doing ok and keeping well I have pain in my riibs  pressure crushing pain same at base of spine also my shine on right leg is worse it feels as if it’s on fire burning acking pain and have sore bumps in it 

Hi,sorry to hear your news.

I too was diagnosed this time last year after having mguss for 3 years. I had severe rib pain in both sides . Treatment started in the feb with DVTD and zometa..I'd say by 3 months the pain had stopped and hasnt come back.Im now in full remission. 

Good luck,you can definitely do this.

John 

So glad to hear that your pain not come back hopefully it stays away and that you are in remission 

I have had mgus for past 5 years but every thing has changed so much over last 6 months I have bad nausea and pain and fatigue feel like my body fighting a battle and struggling to Win but still trying to stay positive but it’s hard at times 24/1/23 not coming quick enough hopefully get all clear and not need treatment 

My fingers are crossed for you.Have you had a bone marrow biopsy and CT scan ?

Yes got bone marrow test and bone biopsy done day I seen consultant on 14/12/22 and got ct done this week (missed appointment on 5/1/23 because of post strikes) 

Ok good luck on the results and if I can help just ask..

Thank u so much 

Puggsy, this might seem like a weird thing to say, but, this is a great time to have Myloma, as the drugs they have now are incredible.

I was diagnosed a few years ago by an idiot doctor who gave me the news bluntly, told me there was no hope. A follow up visit with another doctor changed everything, told me about the great new drugs (which are improving all the time ) I've had chemo, harsh at the time, but a fading memory now.

I am back to nearly fighting fit, I've had care and treatment from fantastic doctors, nurses and others at the hospital.

My family were devastated at the time, but now (apart from some pills I still take) they have forgotten about the illness altogether because I'm doing so well.

I am 72, reasonably fit and fell great. I tell myself that I am blessed, the treatment worked. Slways be positive, especially for those around you.

We pray for the all clear for you, send you love and best wishes xx

Thank you so much Mike your letter gives me so much hope if it’s bad news but I am still staying positive in part of mind for all clear hopefully 

I am so glad to hear how well your doing which is great news I would love to get back some of the way I was before all this started and off the heavy pain meds I am on as I said ur letter gives me so much hope thanks so much