1st cycle treatment

Hi spreader unfortunately this can be the case. It’s important to understand that these treatments not only attack  and kill the cancer cells they also kill surrounding healthy cells but there is also the accumulated fatigue that these treatments bring.

Each day can be ever so different so she needs to enjoy the good days and suffer the bad.

thankyou so much for your reply its just so frustrating not to have any answers for her .

As you may know I don’t have MM but I have had years of treatments and it takes time to develop an understand as to what the rhythm is like and what is side effects from treatment and just normal life stuff when navigating a difficult journey.

Hi I have MM and have just completed 25 chemos of DVTD, I felt really tired, nausea, lightheaded and breathless but it’s worth it as I am in remission. Is your wife’s chemo weekly? 

hi yes its on a weekly basis atm 

Mine was on a weekly basis too, I used to have it on a Wednesday and the steroids used to carry me through till Saturday morning. Sunday I would sleep literally all day and start to feel better on Monday and Tuesday before the whole thing started again. Just have to make the most of the good days. MacMillan support line is amazing and also Myeloma Uk. How are you coping? 

its very difficult atm shes in so much pain with her back .so much so she has to lie down in bed to ease it .she cant seem to sleep atall .very teary depressed also yes its very hard atm 

So sorry to hear this, I was given sleeping tablets which really helped and Zapain which is the higher dose of paracetamol and codeine for my lower back pain where my lesions are. At the beginning of my journey nearly a year ago I was in tears most of the time, macmillan arranged for some therapy for me and it was best thing ever I really turned a corner. Please tell her it’s okay to be tearful. Please go back to her team and tell them she is struggling with pain. Thinking of you both and always here to listen 

thankyou she has a hospital appointment on wed  so i will mention it to her team .

Hope all goes well, let us know how she gets on.