Hi I care fory husband with Myeloma.
He is waiting for a transplant and we keep letting put back, I realize so many are on the waiting list, but his whole cancer journey is now in its second year having been passed from one hospital to another.
We were due to see the specialist on 13 th October and now it will be the 6th November and still no date for the actual transplant.
He is undergoinging weekly chemo maintainance which is getting grueling for him and tbh me too.
It's not really about his diagnosis it's the scale of treatment I'm so worried it will be too late but the time they get round to it.
I also think that the doctors forget how hard it is on the carers, it's actually taking a toll on my health too, both physically and mentally and I'm scared that's will take over and I won't be able to manage (I have my own disability)
It's a horrible time and time is ticking by, just wondered if any of you have experience of this and how to you manage.
Thank you
