Hi everyone
We saw the doctor today and my mums finished her 6 months of cyclophosphamide and Dexamethasone her protein came down to 22 last month but we do to know this months yet, but know she's on nothing, just waiting to see how she's doing in 6 weeks time. She tried lots of treatments and cyclophosphamide is her last, the doctor did say she may go back on cyclophosphamide if she has a high jump in protein or just steroids if a small jump I did ask if she can have a low dose of cyclophosphamide but he said no because then can't have the higher dose. What I'm trying to say is with a protein level of 22 how quick will that jump.up to the late 30s or 40s? Anyone had a high protein but not had treatment?
Thanks Laura
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Hi Laura, I was waiting to see if any members would have first hand experience to help you out….. let’s still look for someone to pick up on your post.
