Immunotherapy for pleural mesothelioma best outcome ?

Sorry about your dad’s diagnosis ,My husband was diagnosed  with pleural mesothelioma in August of 23 a passed October of 23 he was  67 years old. I tried to feed him high protein foods and  foods that had iron and lots of water but really just tried to keep his weight up he only had 3 rounds of immunotherapy before he passed.Hopefully your dad will have a better outcome. Sending you lots of positive thoughts and prayers all your family can do is take one day at a time and make the most out of each day. Hugs to you all 

Thank you I am so sorry for your husbands quick passing that is devastating. I hope you have lots of support around you. It’s an incredibly cruel disease. Hugs 

Thank you yes I have my family and friends that have been great. 

Hi, my husband was diagnosed in early Nov '23 and after draining his pleural effusion and some delays was started on Immunotherapy early Jan.  Everything was brilliant for a few months, no  side effects at all and he felt well.  The 3 month scan showed a significant reduction in the number of tumours and also significant shrinkage.  However our lives changed completely at the next scan, which showed that the cancer had grown and had spread outside the pleura.  The Immunotherapy was stopped and he has started on Chemo.  This is very miserable, his breathing has got very much worse and he is constantly tired and his appetite is not as good as it was.  On top of all this we are having to constantly chase the Oncology unit for his appts, the drugs don't turn up for his treatment and the care and support is frankly shameful.  We are living day to day and all I can do is watch my husband of 42 years deteriorate in front of my eyes, it is devastating.  This really  is a cruel disease, especially as we have no idea how he could have got it.  

I am so sorry to hear about your husband yes it is so devastating to watch your loved one suffer my husband did flooring for 40 years that’s where they traced it to. .he was diagnosed in August of 2023 and passed October of 2023 he only had 3 treatments of immunotherapy and passed 2 days after the 3 rd  round it was so fast. I really hope that your husband has better luck with his treatment and that you have more time with him. Sending you much love hugs and prayers for your husband and you

Hi I am so sorry to read about your husband so young to get this awful disease. Like yourself my dads was out the blue we have no idea how he’s got it! When the 3rd scan showed spread did the team explain why that had happened when positive results of shrinkage were seen for the first 2-3 scans? That must have been hard. Do you know what stage / grade your husbands meso was when he was diagnosed? My dad has had 1 immunotherapy so far but felt it inflamed his body a lot and his breathing went a little worse at times if he pushed himself. He also has terrible middle back pain. He’s 73. I hope you get more time with your husband as I do my dad. Take care x

Thank you so much for your kind words.  I feel so selfish because I am scared of how I'll cope when he goes, we've been together 42 years, selling house etc is all so daunting.  There are days I think he'll see Christmas and days I'm not so sure.  The chemo is brutal and I question its purpose in these circumstances, especially if his last few months are going to be so grim dealing with the side effects.

Thank you so much for replying.  No, my husband is 72, we've been married 42 years!  I really hope your father does well on the Immunotherapy, I think everyone is so different.

I know it’s hard to know what to do about treatment . With my husband I felt he was to week and was not going to get better why put him through  immunotherapy   But they asked him if he wanted it and he said yes he felt if they were asking him it meant there was hope. I did not  want it for him but I do feel . It was too late for him for treatment. He was beyond stage 4 when he was diagnosed.my heart misses him every day I live one day at a time . Hugs 

My mesothelioma was discovered the same way and no idea how I got it. My experience has been quite positive. I was diagnosed in Dec 2022 and had 3 rounds of immunotherapy which shrunk the disease considerably. However due to 2 serious side effects I had to stop treatment and now I’m on steroids for the rest of my life. My recent scans show that there has only been slight growth in the past year. I lead a full life, still travel and go for walks, spend time with grandkids, do gentle exercise, see friends etc. Only difference is I tire easily and have to take a nap early afternoon. I’m 77 years old. 
I hope immunotherapy treatment leads to a positive response for your husband so that he can still enjoy life, day by day, as I do.

All the best

Kathy