Hi I’m new to this group

Hi Tas

Yes. I can imagine the shock you felt! Our lives are turned upside down in an instant.

I went to the doctors with a dull ache down my left side. I was given antibiotics and sent for a scan (just as a precaution) but was told not to think or worry about it. I'm so grateful that my GP acted promptly even if the outcome was hard to take in. I was climbing the hills and doing up to 7 exercise classes up to then!

I had water on the lung and was in hospital for 3 days having it drained.

I started chemo last November. I had 4 cycles of carboplatin and pemetrexed. And up to now 6 cylcles of just pemetrexed. I'm stable but must continue with pemetrexed. I have scans every 9 weeks and meet up with my oncologist after each scan.

I have no side affects apart from fatigue when I have to force myself to rest. I'm back doing a exercise class and last Saturday went swimmimg for the first time since my diagnosis.

Hope all goes well for you when you meet up with your oncologist after the scan.

Judy x

Hello, 

my husband has had amazing results just after 6 rounds of immunotherapy.  We now feel much more positive, life feels back to normal, no side affects at all.  We feel we can live and manage with this cancer and are hopeful for our future now.  There are also other drugs available privately should the immunotherapy ever stop working.  Research is going on behind the scenes so who knows what drug will be available in the future… try to stay positive. Xx

That is wonderful news Anoher day. And such an encouragement to hear. So pleased that your husband can move on feeling positive...that is so important.

I have mentioned immunotherapy to my oncologist but he wants me to stay on pemerexed...have my 11th cycle tomorrow. Do you have to pay for private drugs, do you know?

Very best wishes to you both xxx

Hi another day that is great news about your husband you must be so relieved. Can you tell me what drugs are available privately as immunotherapy did not work for my husband. Thankyou.

My husband had pemetrexed and carboplatin which did shrink the cancer but within 3 months it grew back quite bad. My husband became so breathless I knew something was wrong.  So that is why they put him onto immunotherapy.  So on the nhs they would offer us 1 immunotherapy drug which of course we would have taken, I’m sure it would have worked. But as we have private healthcare they said we would get an additional immunotherapy drug to give him the best chance. So he is on ipilimumab & nivolulab.  A single drip of 1 every 2 weeks then on the 3rd treatment he has the 2 drugs. 

The additional drug should this stop working was bevacizumab this would work with chemo.  Then the consultant mentioned another drug should that not work but I cannot remember the name.  Maybe private there is more choice but worth finding out as you can ask if these are available on the NHS.  

hope this helps xx 

Hi, how is your immunotherapy going ? Have you had your scan results yet ?  Immunotherapy the 2 drugs shrink my husbands cancer by around 50 per cent ….. 

Hi

its gone very well, had my scan two weeks ago and my consultation a week ago, it has removed 6-8 cm of fluid from my right lung, and according to the consultant ithe cancer is now dormant. this is far better than what we expected to be honest.

That sounds amazing, all. The best for the future

Wonderful news  I’m so pleased for you. 
Judy 

Thank you, and hope your treatment goes well.