Hello..

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i'll give it a go. Not usually one for seeking help or advice but I'll give it a go. 

My dad (72) is/was a hard working engineer since as far back as I can remember. He was always at work, if you wanted to spend time with Dad.. you went to work with him. Always happy to help a friend with anything and almost always with a smile and a twinkle in his eye.

He presented at hospital with a severe bad back a couple of weeks ago. Dad never caused a fuss with doctors and the like so this was well out of character. He was treated as he presented... given Tramadol, Co-Codamol, and sent home. A day or so later he was back in and was kept in with worsening pain. Sent to another hospital he had a CT scan and then a second before a full body MRI.

I got a phone call from mum. Dad is in a bad way was pretty much all the sense that was made. She's is not somebody you'd be able to rely on or lean on in a time of crisis. More a panic and run person who hears the word cancer and BOOM.

Graham, my brother, was called to get the facts. Mesothelioma had got him. It has started as it does in the soft lining of the lungs where several tumours seems to have got a hold. The worrying this is it had now got to his spine and is pressing hard on the cord. There are concerns about the use of his legs.

Radio started straight away in order to either shrink or at least keep in check that spine tumour. I expect Monday will be his 5th round of radio and then we'll be informed of the prognosis and plan moving forward.

I live a good 5 hours away and find talking to either of them about this challenge. A.. they don't seem to listen when the pro's are giving information and B.. Dad says "it'll be fine son... lets see what happens" & mum says "I can't deal with this ... I just need to know what the cure is". They don't want to take any help from Macmillan and seem to think they are not entitled to any sort of support either physically or financially. 

I have tried to explain how important it is to reach out ASAP and that having watched my in-laws go through the end stages of cancer.... they amount of help available to them is incredible. 

During this weekend I tried to explain to my old man that some of the meds he has in his "cancer meds box" are dangerous and he should get advice on what can and cannot be taken together. An example is Tramadol, Co-Codamol and his bottle of Morphine. I have no idea if he can use these together in conjunction with the steroids and antibiotics he's taking.

It's all over the place and the weekend felt like i was in a zombie movie. Can I request Macmillan get in touch? do the hospital put it in motion or do my folks have to call themselves (they won't". 

Sorry if I sound like I'm rambling.... I have been awake since 6am Friday just gone, drove to Scotland and back from Yorkshire and I think I ate a packet of crisps at some point. :) 

 

  • Hi and a warm welcome to the online community

    I'm sorry to read about your dad's recent diagnosis and the problems you've encountered.

    I don't have the experience you're looking for but I noticed that you hadn't had any replies to your post yet. I hope you don't mind me suggesting that you also join the family and friends group where you can discuss your worries and concerns with others who may have parents with a similar 'mindset' to yours. If you'd like to do this clicking on the green link will take you straight there where you could copy and paste your post from here into a new post there to save you typing it all out again.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi Munqiman. So sorry to hear about  your dad. I have a good friend who has mesothelioma and she has refused any treatment apart from pleurodesis which has made her more comfortable. She doesn’t have any symptoms elsewhere though. 
    As you say there is much available. You might have to be proactive for them. You might start by contacting his GP and asking for district nurse help. I would also contact your dads clinical nurse specialist who can set everything on a palliative pathway. 
    You could talk to his GP about hospice care if only to give your mum a rest and to get his pain relief sorted. There’s no reason fir your poor dad to be in severe pain 
    I’m sorry to say but your dad needs to get his affairs in order. It will make everything  easier for you all later. 
    I hope things can be sorted to make your dads life a little easier 

    Best wishes. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi... Thanks for taking the time to reply. I'm unsure as to what to say. Short and tall of it is that in no uncertain terms, I was told to "back off". My mother is blinkered in her belief that "the cure" will happen via the "see what happens" method. My sister in law has him gone within the month and the old man looks like he is in agony. My intervention, support or assistance is not required.

    My role is to sit 300 miles away and wait.

  • Oh that’s so sad. I wish I could offer some words of comfort. I’d still contact his GP and ask them to send the district nurse round, tell them exactly what you said here. My very best wishes. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge