Newbie caring for terminally ill mum

Former Member
Former Member
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Hi all, I have been looking after my 71 year old mum for the past 2 years and we finally got a diagnosis last week for mesothelioma and its terminal. At the rate she is declining she will be lucky to reach 3 months . Currently struggling emotionally and feeling very angry with the world. Scared of what's to come. Would be good to connect with others going through or have gone through a similar situation.

Calie

  • Hi Calie, I am sorry to hear about your mum. I do not have any experience of your mums cancer type, but I did not want to leave your post unanswered. 

    Talking to others who are in a similar situation to yourself does help you through this difficult time. There are 3 different support forums on the community you can join.

    Family and friends 

    Carers only

    supporting someone with incurable cancer group

    You will find several people there who are going through a similar situation to yourself.  You can also call the Macmillan support helpline for support 7 days a week from 8am til 8pm on 0808 808 00 00 

    Take care 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Former Member
    Former Member

    Hi 

    My dad also has mesothelioma it's a revolting disease and the outcome is never good im here if you need any help xx

    Emma

  • Former Member
    Former Member in reply to Former Member

    Thank you Emma.

    Meso is a revolting disease. How long ago was your father diagnosed?

    My mum is having a bad today, going to get district nurses to come and administer some of her emergency injections before she goes to bed then hopefully she will manage to get some sleep. I am currently sat in the kitchen breaking my heart at watching my  strong and independent mum being slowly taken away from me by this awful disease in so much pain and discomfort.

    Calie

  • Former Member
    Former Member in reply to Former Member

    Hi Calie

    My dad was diagnosed just over a year ago its a very hard disease to diagnosed I cannot believe it took 2 years for your mums diagnoses my dads had chemo and immunotherapy which have not worked his has now spread to his liver do you have any support because you need it its impact on our lives is immense and I'm on the edge like you most days do you have carers coming in my dads coming to that stage does your mum have a meso nurse? Also look into hospice I know it's an awful thought but they are so good at controlling pain if you have Facebook please join the mesothelioma groups x

  • Hello my mum was diagnosed yesterday, my dad died of it in 2004. Life is rubbish. My mum is 81 had a talc infusion last week. I'm angry.