EPD - post operative pain

FormerMember over 5 years ago

11 replies
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Hi,

my 51 years old mother was diagnosed with mesothelioma in July 2018 and had extended pleurectomy&decortication surgery in September. They managed to achieve MCR and they removed her 1 rib.

After 10 month she still feels pain in the spot were goretex diaphragm was installed, although she can breathe normally. After visiting few doctors, they all said that post operative pain after such huge operation is normal is chronic, but it is still very painful after so much time. She cannot move fast, run or ride a bicycle. In case she lays down on the bad, she feels painless.

Does anyone that had same operation feels same? Do you suggest anything that could help her release pain?

Please share your experiences and good luck to all suferers!

FormerMember over 4 years ago in reply to FormerMember

HI, My father has mesothelioma on his Plura. One large and 7 tiny tumours. The operation will be discussed and he has been told it's major and the whole pleura and diaphragm would be taken away and replaced with the mesh. He's very concerned by this a read so many scary articles. The question is he has a fast growing tumour. Whats the recovery tine for this surgery in reality and is it a quality ion life afterwards worth having? Or are you left partially disabled with the pain and lacking a normal life? Thisnis his fear. Also does this operation gain much more time or will he recover in pain and that be his extra time? Now everyone is different so we are interested in your experience. He's also scared of the danger of dying under surgery as it his major.

thank you

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EPD - post operative pain