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Hello. It has taken me a long time to decide to join here. I don’t know why…just feels out side my comfort zone! I first had a melanoma in 2021..which was removed along with 3 involved nodes. All done and dusted…or so I thought! Last year I had further...
This may be a strange question is stage 3a braf melanoma no evidence of disease but on surveillance still classed as a serious health condition, I have looked in to it and says it is. Just asking as been called for jury service and have asked to be excused...
Hi my name is Nola i was diagnosed with stage 3 melanoma in 2021. I have had a years worth of immunotherapy but have had 2 recurrences now. I have those melanomas removed but was told that the immunotherapy hasn’t worked. it’s a scary place to be and...
Hi, unfortunately I've been upgraded to stage 4 melanoma. Primary and satellite lesions on scalp excised 4 weeks ago Hot spot on PETScan confirmed by MRI as pelvic bone tumour. I'm BRAF positive. I have an oncology appointment tomorrow to discuss treatment...
Morning All! Hope you all doing ok (ish)? Pre diagnosis I booked a holiday and am still very much living life and intend on going but I've found out that the existing travel insurance policy I have with the bank will not cover the diagnosis as it...
Melanoma stage 3c, I’ve had a WLE with clear margins. Head and body scans were also clear. I’m due to start adjuvant Pembrolizumab immunotherapy, on Friday 20th March, every 6 weeks for a year. I’ve been told about all the possible side effects and I...
Hi all. I am new here and joined as I just dont know what else to do. My husband is two treatments into a four treatment course of immunotherapy and hasnt moved from the bed or sofa for 8 weeks now...and when I say hasnt moved, I mean quite literally...
Hi All! I had my WLE and SLNB in my left are 9 days ago and my skin is so sensitive. I spoke to the SCN and told it’s normal, but does anyone have any recommendations to help? Its driving me crazy so after any advice Hope you’re all ok ish? Enjoy...
Hi , after waiting 4 weeks for the biopsy I was called Wednesday to say that I had to go to hospital the next day to discuss my biopsy results. I went and I have melanoma stage 1. I know its only early stages but I have heard of horror stories of it retuning...
Morning All, Has anyone experienced puffiness/swelling in the hand following the WLE & SLNB in left arm and left armpit. Should I be worried? Happy Sunday all Kate x
