Hello. It has taken me a long time to decide to join here. I don’t know why…just feels out side my comfort zone! I first had a melanoma in 2021..which was removed along with 3 involved nodes. All done and dusted…or so I thought!
Last year I had further surgery and the removal of 30 nodes…13 were involved. I started Immunotherapy in the summer,…am about to have round 5. I was told I would need it for up to 2 years or for as long as It was necessary and I could cope with it.
my question is is it normal to have quite so many side effects? I’m scared they may cancel it. I have just spent 6 days in hospital and have had treatment delayed for 2 weeks to give my systems a break. It has effected my thyroid last month and my endocrine systems this time..hence the 2 weeks delay.
Thank you….. would value hearing of others experiences on the duel combination of immunotherapy..
Hi WJC and a very warm welcome to the group which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and I was diagnosed with melanoma in 2018. Although I don't have any experience with immunotherapy, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
There are a lot of group members who are on immunotherapy and, hopefully, some of them will be along soon.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
