Tvec for Melanoma

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Mum has just started Tvec for melanoma in her leg - week 2 -we’re keen to hear others tips and experiences and to share ours - in short when to worry and when to accept that it’s all part of the treatment 

  • Hi  and a very warm welcome to our corner of  the online 

    Although I was diagnosed with melanoma I didn't have T-VEC, or talimogene laherparepvec to give it it's full name. However, I noticed that your post hadn't had any responses yet so responding to you will 'bump' it back to the top of the discussion list again.

    I've had a look in the group to see if anyone else has had the treatment and found the most recent person to have mentioned it is  . I've tagged her into this reply and hopefully she'll pop on and share her experiences with you.

    While you're waiting for replies, it would be great if you could put something about your mum's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hi  

    Thanks for your message.

    I am happy to share my story.

    My melanoma reared its ugly head again in the second half of last year. I began my Tvec injections in March and have now had 5 rounds of treatment over the past 12 weeks. I don’t want to give you any false hope because a cancer journey is different for everyone, but for me the treatment is working very well with my tumors all having shrunk in size and appearance.

    It is painful at the time of the treatment and for a few days afterwards and the treatment does honestly zap your energy levels somewhat but apart from that I have had no significant side effects.

    wishing your Mum all the best.

    Kate

  • Thank you so much Kate - she’s just had her second treatment - very painful I gather but she seems to have recovered well - one small tumor is weeping a little but it’s encouraging to read your feedback