Stage 4 melanoma

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Hi all, 

My husband  had 0.70mm melanoma  on his shoulder  Oct 22, had it removed and given the all clear . Fast forward  to Feb 2025, he decided to have a voluntary  lung function test offered by the NHS  which showed a small shadowing  on his lung and swollen lymph node directly under the original melanoma. Further dates given for biopsy and within 3 weeks his condition deteriorated and was rushed to the local hospital,  further tests/scans/mri and was told  Stage 4 melanoma  in his lymph nodes,  liver, multiple in his vertebrae  and 3 lesions in his brain. He  is receiving  Target therepy  and has just had Gamma Knife Radiotherapy . So far he is responding well  to the treatment  with monthly  bloods and Oncology appointments . The future is uncertain,  our lives have been turned upside down in a matter of weeks. Trying to enjoy the good days but it's a struggle to say the least.

  • Hi  and a very warm welcome to the group 

    I'm sorry to read that your husband has gone from being given the all clear 3 years ago to having stage 4 melanoma. Melanoma is such a sneaky cancer that most people here will fear that one day it could come back.

    There are quite a few people in the group who are stage 4 and I'm sure they'll be happy to share their experiences with you if there's anything that you want to ask.

    Sending virtual (((hugs )))

    Anne

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Your situation sounds similar to ours, my husband had a mole removed in 2018. Fast forward 6 years to Jan 2025 and he was coughing up blood with shoulder pain. Went to a&e and received a ct scan where they found a tumour on his lung. More tests later revealed melanoma had spread to the lung, liver, lymph nodes, spine and today we found out after 7 months of targeted therapy that it’s now in his brain too. He started immunotherapy (ipi/nivo) today so hoping and praying that gets to work soon. He may have possible radiotherapy on his brain if his symptoms become worse. We were so optimistic before the news today but now feeling so deflated. 

  • It’s really tough and I feel for you. 


    I had 3 skin melanoma removed in 1997.1998 and 2002 thinking that clear 5mm margins and annual dermatology appointments would be the end of it. Fast forward to Jan 2025 and finding a lump in my abdomen which I could feel through the skin. Lots of scans, removal of ovaries and biopsies later, I find I have advanced melanoma in my ovaries, mesenteric layer, gall bladder and lymph nodes, metastasised from the original skin cancers. Operating is too complex and dangerous so I’ve had 3 bouts of ipi/nivo and 1 of nivo. 
    Side effects are tough and I’ve ended up in hospital 3 times but steroids seem to work to calm things down and I started back at work today.

    What I really wanted to say was that my main tumour reduced by half in the 1st 3 months and I feel (almost) normal, so please don’t dispair. Life is so very precious and every second counts, but it has given me so much hope. I feel like I gave my oncologist my life wrapped in flimsy tissue paper and she’s given it back to me wrapped in cardboard. 

    I hope your journeys are as positive. Take each day as it comes. 

    sending love and healing vibes. 
    Lindsay

  • I'm stage 4 with 3 brain metastaseis and bilateral adrenal metastases and had an excellent partial response to fortnightly nivolumab post stereotactic radiation surgery on the brain mets.  There is hope! Keep strong, Andy.