Confused, frustrated, floundering. Can’t seem to get a grip on doing what is necessary to help myself.

  • 2 replies
  • 75 subscribers
  • 150 views

hello all. I’m very happy to be here, thank you for allowing me to join you. I was diagnosed with metastatic melanoma one year ago. It began with a malignant skin melanoma on my back which was surgically removed 8 years ago. Nothing was ever discussed, explained or suggested regarding any sort of follow up care. I’ll try to make this as short as possible. Last year I discovered a baseball-sized lump in my right armpit. I was started on immunotherapy with keytruda annd after 3 months the tumor had increased in size. I underwent surgery at Mayo Clinic and the surgeon was able to remove ALL the cancer. Unfortunately there was an entire year of problems to include a second surgery for infected foreign body at drainage-tube site, wound vacs and repeated trips to hospital which is a 2-hour drive from my home.  It was a mess but I got through it all and on the day that was to be my last appointment with the surgeon, I asked “by the way, what is this little lump in my neck?”.  The look that passed between the surgeon and her assistant was more than I could tolerate and I broke into hysterical sobbing.   Now I’m on my third month of immunotherapy with Opdualag, scheduled for yet another PET scan on January 2 to determine results.  I procrastinated joining this group for the last month because I had pretty much given up. I am a 69-year-old single woman with basically nothing to live for and I’m very tired of this illness, my life, the USA…. that’s not the right mind-set to try to heal myself BUT I know I CAN! When I pull myself out of this depression (it happens every now and then) and I start watching and reading about healing, I get excited and want to go for it. I have the faith, the tools and the basic knowledge, I just need to do it and I know that with help, love, understanding and encouragement ~ from people like you ~ I will heal myself and won’t have to leave my precious dogs homeless, which is my biggest fear and regret. 

  • Welcome to the group, you really have been through the mill, but you are strong you’ve got urself this far & you are fighting it every day …everyone on here are on hard journeys & just by reading others stories it gives hope & strength.

    its perfectly understandable to feel depressed & not see the point anymore ive been there too … I’ve spent alot of time at home in bed not interested in doing anything or going anywhere I don’t feel I should answer to anyone for the way I feel.

    My last set of scans in November showed no evidence of disease I’m currently on nivolumab maintenance for the next 18months following 4 sessions of ipilimamab & nivolumab
    so providing you can tolerate it immunotherapy really does work for melanoma .

    Be kind to yourself you are doing so well considering everything that has been thrown at you.

    sending you hugs Hugging 

    Alli x

  • Thank you so much. I needed this!