I was Diagnosed with Melanoma in my Eye in 2023,
Had Proton Bean therapy in Clatterbridge Cancer Hospital in Liverpool, followed by routine, checks by Moorfields in London, then followed by that MRI Scans every 6 months, in February this year, MRI showed something in my Liver, Addenbrooke's arranged a biopsy, which proved positive. Since then ive been having immunotherapy, every week, the drug im on is Tebentafusp, would love to know any one else on Tebentafusp .
Many thanks.
Adrian 82
Hi ADRIAN82 and a very warm welcome to the group which I hope you'll find is both an informative and supportive place to be.
I was diagnosed with skin melanoma nearly 9 years ago now but didn't have Tebentafusp so don't have any experiences of this drug to share with you.
As you've found, the online community is divided into different support groups so I'm going to suggest that you also join and post in the eye cancer group, which includes ocular melanoma, as you'll then connect directly with others who have the same type of melanoma as you.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
I've just had a quick look in the eye cancer group and there is a post there from someone whose wife had it as treatment. There could be others there who are on this drug who just haven't posted about it yet.
All the best with your treatment.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
