I am being treated for Mucosal Melanoma of the vagina, which I know is rare but wondered if there is anybody else out there with the same cancer type.
OR
Anybody else out there on the Harmony immunotherapy clinical trial- I’ve just started wanted to share experiences.
Thanks
Hi Gilly99 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I don't have any personal experience with mucosal melanoma so had a look in the group to see if there are any previous posts and found these for you to look through. Unfortunately I didn't find any posts which mention the Harmony trial.
x
Hi gilly99, My husband was diagnosed with anorectal mucosal melanoma on 23/8/2024. I tried to respond to a different post by yourself with information and a specific mucosal melanoma support group both myself and husband have found very helpful since diagnosis however i was contacted by a moderator to say that my post could not be approved and that we could consider private messaging if I wanted to signpost you to this group. Please feel free to message me should you want to know any more information.no problems if not. The one thing I’m learning through this whole process is that time is too precious so spending it wisely any way you see appropriate is fine by me
Donna x
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