Hello, I'm just new hear

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So I am 31 with two kids, 12 and 6. I fdlt for years I keep getting the bad hand handed to me and time and time again overcoming something new.

On May 2019, I presented at a doctor for an itchy, rash looking mark on my back... lockdown began, this itch because bleedy, lumpy and scabby. Fast forward now to October 9th and I was given my diagnosis of stage 3 melanoma.

Went into my appointments on my own to be told then after with my surgen and each time they asked did I really understand what I have? Both times 'yes everythings fine'.... reality hit... no everything isn't fine... I'm sad for my family, I'm sad they need to watch me on edge not knowing when the appointment will come, or will another letter come to tell me to go back in for more bad news. 

And now it has sunk in I have lots of questions! Who should answer my questions? How do I know if im just overthinking or am I really feeling unwell due to this? 

Thank you x

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  • Hi and a very warm welcome to the online community

    Being told that you have cancer can take a while to sink in. I remember just feeling numb when I was told and then afterwards thinking of lots of questions that I wanted to ask.

    When you say "who should answer my questions?" I'm not sure if you're meaning here within the community or within the medical profession. If the latter, then you should have been assigned a skin cancer nurse specialist (SCNS) who can usually answer any questions you might have or who will speak to your consultant on your behalf.

    If you're meaning here in the community then there are lots of people in the group who are Stage 3 who I'm sure will be happy to share their experiences with you. The easiest thing to do is to start a new post and then ask your question. 

    It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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  • Hi xx I am stage 3a and I am 3 doses into immunotherapy treatment. I am ten years older than you but still feel like how the hell can this be happening to me at this age ! X you can read my story by clicking on my name. 
    I feel like I am living in someone else’s nightmare some days but other days I am so positive and think I have got this and I will get through my 9 doses of treatment and beat Melanoma once and for all x 

    Best advice I can give is dont over forum / don’t over google. The internet had my head absolutely spinning some days x

  • Hi , you don’t have to and can’t ask all the questions in a hospital appointment. They should give you the number of a keyworker usually a specialist cancer nurse who you can call and ask questions inbetween appointments. They have a remit for listening and giving info based on your needs but you need to open up to them. They can help with the anxiety side as well as the factual info side, the referring for financial help and any local support groups or organisations as well as national melanoma specific help. 

    There’s also the Macmillan support line to listen to you sometimes you just need to talk your fears out or at least put them onto paper to either dismiss or explore what can can help. There’s also all off us on here and our experience, as Latchbrook says.and I see Amccl has already introduced themselves. 

    You say it is over 2 years since your stage 3 diagnosis, something must have triggered reaching out now I would imagine. My diagnosis was in 2015 and I’m still on this melanoma pathway with options which you can see in my profile (click on my user name or picture). I will keep a look out to for your next post.

    Take care KT