After effects of immunotherapy

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Hi my partner was diagnosed with stage 4 melanoma which had spread to his liver and lungs. After several surgeries to remove melanoma and lymph nodes, he had 4 doses of immunotherapy. His treatment stopped due to colitis which put him in hospital. A year on he continues to be in remission which is fantastic. However he continues to suffer with fatigue, nausea on a daily basis. He also has symptoms of colitis and every now and then the skin on his hands and feet start to peel. We assume this is the immunotherapy continuing to work. Does anyone else suffer with this? How do you deal with it?

  • Hi Lv2garden.

    We are so sorry to hear about your partner's diagnosis and great to hear he is in remission. Unfortunately I have no knowledge of the side effects of immunotherapy treatment. My Mother passed on 28th December following a 5 year battle with cancer so I have some experience but unfortunately cant help you at this time.

    Please know that we are here for you, with thoughts truly and deeply meant.

    I promise, it will get better.

    Myles.

  • Firstly as he should still be under the care of his Oncology team you should certainly seek advice from them.

    Otherwise, the answer may depend on the drug he has received. For instance my own Pembro (Keytruda) is known to have skin peeling as a possible side effect, bearing in mind it can cause severe dehydration thoughout the body.  The CNS may be able to help.  Unfortunately as in my own case new side effects can arise after the end of treatment.  Fatigue is a very common consequence of all treatment and nausea can be helped by medication from your GP.  In my case the hospital asked the GP to prescribe Domperiodone on repeat prescription.  Wishing you both good things.

  • MylesLBF

    Sorry for the loss of your mother. Thank you for your response. It's appreciated. 

  • Thank you for your response and your good wishes. It is reassuring that fatigue is a common side effect and not specific to him. He gets frustrated as he can't do the things he used to do due to a lack of energy.  He sees his oncologist every 3 months at the moment.  He is now going to be referred to the gastro team to investigate his stomach issues further. Fingers crossed things can improve. Wishing you all the best with your recovery.