Side effects of nivolumab

Hi I have been on Nivolumab for over 2 years and haven’t had leg twitches. I have had slight joint pain at the start of my treatment and a slight rash . I now am only tired after the infusion. However I do suffer from insomnia and have tried most things without much success. My consultant said it wasn’t a side effect of the treatment and to consult doctor. He recommended low dose sleeping tablets. I haven’t taken many as just having them seems to give me reassurance. I suggest your husband talks to his support team and asks for advise. I wish him well .

Thank you for replying my husband has been given phenegan sleeping tablets by the gp but they do nothing for him we are seeing the oncologist on Wednesday.

Hi, I also suffer from Insomnia, been on nivo for 20 months now. I do take sleeping tablets but not every night and cut into quarters to lower dose. Does help, very random like alot of other minimal side effects on this treatment. 

I hope you have reduced your Insomnia now!

Hi

I’m on 2 weekly nivolumab infusions since august last year & have restless twitchy legs on the evening of the day I have treatment this has every time I get treatment but then it’s gone the following morning I also get a horrible metallic taste in my mouth the day of treatment & then it’s gone… I have found to soak in bath of Epsom salts before bedtime  helps my restless twitchy legs. Insomnia is a regular visitor to me too … sleeping tablets melatonin I find the best as they don’t give you the after effects of being groggy / foggy the day after …

Hope this helps … best wishes to you & your hubby on your journey 

Alli x