Immunotherapy

Thanks for replying HollyBT, your husbands story sounds similar to my husbands the only difference being the melanoma started in my husbands arm. We saw the consultant last week and he's decided my husband will have treatment every 6 weeks for 12 months. He's hoping to start in the next couple of weeks. As for talking about it we're  both really good at voicing any concerns we have with each other as my husband has lost siblings to cancer and like you we dont want to dwell on it too much. It would be great if you could update me on how you and your husband are getting on as it sounds like we're going through similar situations.

Hi there I have stage 4 melanoma cancer I was diagnosed in May 2020. Had to have my lymph nodes removed from armpit and then after about 5 weeks I was starting my immunotherapy which was the two drugs Pem and Niv. After my first treatment I felt a little poorly for a few days like flu symptoms.

Yes it sounds like they will share the same treatment plan though I guess no two journeys are quite the same. He had his first session 10 days ago and seems to have tolerated it well. He has been very tired but it is difficult to know how much of this is still recovery from the op and how much might be due to the pembro. Unfortunately he has an underlying condition which also worsened at around the time he was operated on and this can also cause fatigue so difficult to unpick. Has your husband started his treatment yet? I hope it goes well for you both. It is so horrible and scary having to see loved ones dealing with all this. Especially difficult at the moment when it is not possible to have friends and family near.

Hi, I was diagnosed with Stage 4 Metastatic Melanoma in Dec 19 with 2 Internal Tumors. I Started on Pembro late Jan 2020 and as of October last year both Tumors have shrunk to the point the are not visible. This is the best result we could hope for, though the treatment has led to a severe flare up in my Ulecerative Colitis (which I have had for 25 years). Im feeling very positive about the future and my experience with Pembro has been very positive. My advice on helping is to listen and encourage him to talk to MacMillan who have been very supportive for my family and I

Hi HollyBT, my husband has his first treatment next week. We noticed my husband has been very tired since his operation. I hope your husband is doing ok.

This is all interesting for me, I start on Monday, signing the consent form tomorrow. I had a disastrous time with the tablets, my hearing and sight badly affected. I’m hoping this will be better, although being an ulcerative colitis sufferer is worrying.

Hi Tan21, hope it all goes well for your H. Be interested to hear how he gets on. My other half is half way between sessions. He is improving after the op (6 weeks now) feeling less tired and putting some lost lbs back on. So far no side effects from the Pembro.

Hi HollyBT, I hope your husband is doing ok. My H had his 1st treatment 11days ago he's not had any side effects as yet. His tiredness seems to be going as well.

Great to hear your husband is not suffering any bad side effects. I had my first course 1st March and the next is due next week. I have been very tired and my guts are messed up, which is expected.

@Tan21 I am due to start pembro on Monday x how is your husband doing on pembro ?