I was an active member here for a number of years but got lost when the website changed. I thought I would make the effort, wrap my mind around the 'new' format and post. This month I received news that my latest scans were clear, which makes it five years NED (No Evidence of Disease). I was one of those people for whom Ipi on its own worked. It shank my tumours until there was no track on the scans. I am now on yearly scans.
Not everything went perfectly. My anterior pituitary gland was permanently damaged as a side effect of the immunotherapy, so I now have 'secondary adrenal insufficiency' and have to replace my missing thyroxine and cortisol daily. However, I am still here and enjoying life.
That's great news that you're still NED !
Thanks for taking the time to come back and share this with us as I'm sure those who are still on treatment, or just started it, will take great comfort from your news.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
