Immunotherapy induced diabetes

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After my first immunotherapy session for stage 3c melanoma with satellites. I have developed immunotherapy induced type 1 diabetes and I’m currently in hospital getting stable and starting on insulin. As of Cancer and immunotherapy we’re not enough to deal with I now have to try and cope with this. Is anyone dealing with this?

  • I sailed through my immunotherapy.obviously I had tiredness and sometimes sickness usually stuff you expect I have never heard of this . So sorry you have to endure that on top of everything else  . I can’t help I’m afraid but here to support 

  • Consultant said less than 1 percentage of people develop Type 1 diabetes because of immunotherapy, it was actually the only side effect I had

  • Hi, this has happened to me after my 1st and so far only session of immunotherapy.  I am struggling to deal with a cancer and now diabetic diagnoses.  Has it got any easier for you? 

  • It was a shock, of all the side effects I was prepared for T1 diabetes wasn’t one of them. However I am learning to live with it. The diabetic team have been great very supportive, on the plus side I’ve been so busy concentrating on that I haven’t been dwelling on my cancer diagnosis. I’m now just taking one day at a time. It is overwhelming at the start but you can do this. Get as much information as you can and just take it day by day. Let me know how your getting on.

  • Thank you.  I’m also finding it overwhelming and has had such an impact on my life but like you, I am trying to take it one step at a time.  It has made me very nervous about having further treatment though. 

  • After a lot of thought and research I have decided not to have any more immunotherapy. I’ve just had a full body scan and a brain scan and I have an appointment with my oncologist in another couple of weeks for the results and to discuss the way forward.

  • The same has happened to me.  I was a bit overwhelmed at first when I was in hospital with DKA and a new diagnosis, but I'm 8 months down the line now and its just a part of who I am.  The immunotherapy has saved my life and the diabetes isn't even a major inconvenience.

  • I hope to get to the same place as you regarding living with the diabetes but I am quite a way off that right now.

  • I’m in a similar place, I’m waiting for the results from a CT Scan so I can decide how to move forward.  The diabetes really has scared me.

  • Its a lot to take in but I'm sure you'll get used to it quicker than you think.  I remember being completely overwhelmed at first.