Hey all
I have been diagnosed with Melanoma 3.1mm PT3a and my recent CT scan has shown no signs of metastasis. The MDT meeting that discussed my case and agreed treatment was on the 31st July. I am under Preston hospital. I have been told my Wide local excision & Lymph node biopsy will be done and we are looking at October for surgery date.
I know people have it worse than me - and I know the nhs is completely understaffed and underfunded but this is a hell of a long time to wait isn’t it?!
God forbid it is in my lymph nodes, I want to start treatment as soon as possible.
My partner starts a new job on 15th September who don’t owe him anything in regards to time off to attend appointments with me etc - I was really hoping I’d have had the surgery at least before his start date.
Am I missing something here?! Feel free to tell me if I am. But OCTOBER?! Help me please. I’m so stressed with it all :(
Please try not to worry but I fully understand what it’s like. I was diagnosed as having a melanoma in my groin ( in a lymph node) It was like a death sentence! I had numerous scans which threw up other concerns which after investigation were nothing so finally was operated and had the cancer removed in 21st June 2024 (2 months after diagnosis). All was well. Nothing else was found so a massive relief. As it was stage 3B and I was cancer free, I had a choice of leaving things and having regular checkups or immunotherapy. Preventative immunotherapy. After lots of serious deliberation, I agreed to have it every 6 weeks. I’ve only 1 more infusion to get in September and that’ll be the end of it. Thankfully, no serious side effects at all. Skin has seen some changes, started as acne like spots on my boobs, gradually changed and now there are quite a few pigment changes like mini vitiligo. It’s a bit annoying as I’m quite vain but other than that, nothing to moan about!!
Finally, my last piece of advice and I sincerely mean this, Pray, ask God to please take the dreadful worry and fear from you, ask him to carry your load. I did this and I promise you, I woke the following morning like my old self and I’ve NEVER looked back. In truth,I’m not sure where I’d be now if I hadn’t had God’s help. I’m sitting in my holiday home in Spain writing to you. I’m about to go and sit in the shade by the pool. I’m no longer mahogany but I’m happy and full of the joys of life. Fake tan and makeup is just as good. I’m alive and healthy and this Immunotherapy seems to be a game changer.
you’ll be fine. Certainly you could ask to have surgery sooner, even in a different location.
Trust in God and your physicians and , be 100%positive and don’t allow cancer to ruin your life. Be happy.
all good wishes,
Rosemary x
When I had my mole removed, I was told that the wle was not urgent as all the melanoma had been removed. Mine was done about 4 weeks after my initial diagnosis, which I was surprised at, as I was expecting a longer wait. I also had a slnb at the same time as the wle and skin graft. One of the removed lymph nodes had melanoma, but the ct and mri scans that were carried out later showed no signs of spread. I chose not to go down the immunotherapy route.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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