Hi,
just wondering if anyone can share any experiences of the following, after ordinary treatments have been exhausted:
TIL or T Cell therapy abroad
molecular profiling
compassionate use trials
thanks so much in advance x
Hi Rs2025 and a very warm welcome to the group which I hope you'll find is both an informative and supportive place to be.
I’m sorry to read that ordinary treatments haven't worked for you so I can understand you wanting to see if anyone has any experience of alternatives.
Apart from a WLE I didn't have further treatment but there are others here who have, although I don't know if they've had the treatments you mention.
While you're waiting for replies you could try the group search function to look for anyone who has previously posted about the treatments you are interested in.
It would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
