Nerve pain lymph node biopsy

hin All i am a DLBCL patient develop recently. going for my first Chemo tomorrow any suggestion Please

Hi there 

so sorry to hear you are suffering so much with nerve pain….i also suffered nerve pain after wle & groin sentinel node biopsy I was referred to lymphoedema clinic where they showed me how to do lymph massage & different exercises to relief pain & I also wore compression stocking for a short period of time …as time went on the nerve pain improved with healing & rarely bothers me now …I also found rubbing in castor oil a couple of times a day really helped 

hope this helps perhaps speak with you CNS re your options

Alli x 

Thanks so much for that that’s really helpful.

I have my follow up with the consultant in a couple of weeks so if it’s no better I’ll ask for a referral to the lymphoedema clinic. 

There’s so little advice online on how to manage the pain. 

Pleased to hear your pain resolved in time. 

best wishes xx

Hi,

I hope the pain is easing, the way the surgery affects nerves is obviously different for us all and I really hope yours improves. I have to share my story, it makes me smile now but really affected me at the time. After I had WLE on my thigh and lymph node excision from my groin, I turned over in bed about 3 days later and felt the horrible pain of the skin across the top of my entire thigh tear open - not where my WLE was and just down from my groin. I screamed, woke my wife up and asked her would she peal the bed quilt back and carefully view the huge open wound on my thigh. She was petrified and did so carefully. There was absolute nothing there. Leg fully intact (of course).

What I still don’t have the answer to is whatever caused that sensation through my nerves. It was horrific and genuinely felt like my skin had just ripped apart, but seemingly from nothing and I haven’t experienced it since. I get restless leg now in that leg only, but apart from that no pain or sensations such as above.

I wish you well and hope you make a full recovery. I appreciate this doesn’t answer your question but hopefully an example of someone who’s nerves have ‘repaired’ in comparison to three years ago.