Nivo - change in infusions

Hi Allyona 

I don't have the experience you're looking for but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

I hope your side effects don't get any worse

((hugs))

I was on it once a month, never noticed any side effects but in the end it didn't work for me.

Hi Allyona

I have been on 480mg of Nivolumab every 28 days since February following 2 cycles of Ipilimumab and Nivolumab end of last year (after which I had colitis and therefore a break until symptoms treated).

I don't have any dramatic side effects and they seem to be holding pretty steady. 

A fair few of the people I meet when having my infusions are on the same dose. 

Hopefully you will be able to tolerate the revised treatment. 

I can't believe that the treatment has resolved the 4 aggressive brain mets I had in 2023. 

Wishing you all the best.

C

I too went that way..every 4 weeks and no further side effects other than tiredness. Been 16 months now and all good.