Just found out

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Hi, I have just found out that I have secondary melanoma. 3, tumours (are they tumours???) , in my lungs. Previously . I have had a mole removed on my back and lymph nodes in both arms. Only one lymph node had cancerous cells, measuring less than a mm. This secondary cancer has been found 16 months after the primary cancer was removed. I don’t appear to have any other symptoms and feel really well. I’m just flabbergasted that this is in my body. I have asked Dr Google as I await for an oncology appointment and further scan. This has proven to be a nightmare, one minute I will definitely not be here and the next I could. Just wanted to reach out. 

  • Hi  and a very warm welcome to the group.

    Discovering that your melanoma has spread to your lungs must be very difficult but there are quite a few people in the group with secondaries who I'm sure will share their experiences with you.

    While you're waiting for them to reply, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi

    Sorry to read you are having a tough time.

    My husband has metastatic melanoma in his lungs. In 2022 he had a mole removed from his back and lymph nodes from armpits removed. He then started 13 months of immunotherapy treatment and was ok until August this year when we found out it was in his lungs so he is now on his 2nd combo immunotherapy treatment of a planned 4.

    Everyones journey is unique and I find it helpful to hear others stories so hope you do too.

  • Hi Joanne 

    it’s a rollercoaster ride nobody wants to be on but it’s gets a little easier when u have a treatment plan & get started with the treatment 

    like you I had no symptoms other than the mole /growth & I was totally shocked to find out I had mets on lungs & brain & subcutaneous mets

    im on immunotherapy today I’m on my 10 session & have scans again next month they are done every 3 months 

    once you have wrapped your head around the shock of it & have a true picture of your diagnosis it is now very treatable with immunotherapy 

    Any questions that I can help with I certainly will just ask

    this forum is a huge support so many fantastic people on here have got me through some very dark days & endless sleepless nights 

    best wishes & hugs 

    Alli x

  • Thank you for your message, your words have helped. I start treatment on Thursday. I am still in a bubble that is this is not real. Apart from feeling tired, I feel myself so I am hoping for the best. Not really told anyone, don’t know why. Dreading the thought of side effects and having to stop treatment and not having my brain scanned until the 18th of this month. Not sure what a subcutaneous is but I hope your treatment is going well xxx