Hi everyone.
My mum has been diagnosed with stage 4 melanoma today, with three lesions in her brain, two tumors in her liver, one in her lungs and I think some others scattered around her body. It's obviously been a very tough day for my family, especially after she had a local-regional recurrence in May, but we're determined to help my amazing mum put up a good fight and will do whatever we can to support her.
She will be having targeted radiotherapy to remove the tumors in her brain (due to the complication of her having a blood clot in her lungs and therefore needing swift treatment so she can take blood thinners), and combined Ipi/Nivo, possibly starting next week.
I know Ipi/Nivo is potentially less effective for patients who have already received a single course of immunotherapy, although it's still possible to have a complete or partial response. That is what we're desperately hoping for.
I was wondering if anyone else had experience of this - of being treated first with Nivo and then being offered the combination. I've been looking for positive stories to share with my mum (and found plenty on here, thank you everyone!) but I would love to be able to point out somebody who has been in her situation and come through it. I want to give her as much hope and motivation as possible.
Thank you
Hi Pip93
I've 'spoken' to you on other threads so I know how worried you are about your mum but also what a positive outlook you have towards her treatment.
I can't help with any experience of these drugs but I noticed no one had come forward yet. Responding to you will 'bump' your post back to the top of the discussion list where it'll be easier to see.
((hugs))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
That's fantastic news Pip93 ! I bet your mum is thrilled too.
Just goes to show how medical advances are being made all the time 
"Never regret a day in your life, good days give you happiness, bad days give you experience"
