An update that might encourage or reassure others contemplating this regime.
I completed the initial course of four dual infusions in January and have now received three ongoing monthly doses of Nivolumab alone. I was a little daunted by the list of potential side effects but in reality I have been fortunate indeed. My thyroid has left home in disgust without leaving a forwarding address and so I have to take Levothyroxine daily. It kicked in within two weeks and the fatigue and sluggishness of hypothyroidism has resolved. I get an intermittent mild rash that needs occasional antihistamine cream. I had an intermittent chesty cough for three months but that has gone. Importantly - the affected lymph nodes in my neck disapperared completely after just the second double infusion.
So all good so far. I'm over seventy with few other issues but I'm not blind to the ability of melanoma to rear back up like a Kraken from the deep. But I'm philosophical and grateful for the extra time. The glands in my neck threatened to become very inconvenient very quickly.
If you are on the cusp of going down the immunotherapy route I hope it helps you to know that I have, so far at least, successfully navigated through a long list of potential side effects without pain, discomfort or too much inconvenience.
What an encouraging post to read! That’s great to hear.
I’ve just had my second infusion of Nivolumab (I have it every 4 weeks). No side effects after the first treatment but my muscles and joints are quite achy after the second. I’m taking that as a sign it’s working. 
Not sure whether that warrants a phone call using the number on my blue card to report it or not? I’m 45 so not usual for me. I’m managing it easily with ibuprofen.
