New stage 1 diagnosis - Question about staging and diagnosis/treatment

Former Member
Former Member
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Hello folks,

This is my first post but I’m already finding the level of support this community offers to be very kind, practical and generous. Thank you.

Following an excision biopsy on a mole (which appeared 3 years ago and had started growing rapidly) I received a malignant melanoma diagnosis two weeks ago. It’s on my upper arm/shoulder. In spite of the shock at hearing the words, I feel fortunate that it was caught early. I have been dealt with quickly on the 2 week wait pathway and received the news from a cancer nurse specialist.

She explained to me that it’s thin, 0.5mm and stage 1a and no ulceration and that I would have a wide local excision with a 1cm margin around the biopsy scar, which she expects to be curative. 

I’ve since seen my pathology report, which my GP had uploaded onto my medical record and which is visible on my Patient Access app.

The report states that ‘ulceration is present’ and stages the melanoma at 1b.

I emailed the CNS about it, who said ‘there’s a difference between clinical and pathological diagnosis so it’s 1a, don’t worry about it.’

I find I am worrying about it. This is because for 1b I believe that lymph nodes are also checked. I am worried about something being missed now and causing a problem later.

I feel like I’m making a fuss, when really the news is more or less good, for a melanoma diagnosis, and when I know many on this forum are dealing with extremely different and difficult scenarios. But I have close family experiences of things being missed at a stage when something could have been done about it. I want to believe it’s all going to be fine but I’m finding it hard to trust the process, especially when finding this discrepancy in my report and what I’ve been told. 

Anyone else have any similar experiences? How critical is it to have a SLNB? Am I making a fuss about nothing?

Thanks you, and much support and strength out to you all.

xx

  • Former Member
    Former Member

    Hi Luna 21,

    Sorry to hear about your diagnosis.

    I totally understand your worry. 

    I was too, worried when my consultant said that my case is low risk and waiting time for WLE&SLNB might be 2 months, I wasn't convinced /happy about it. I have emailed the department secretary to ask if they can put me in touch with another consultant to double check and got a phone call from the lead consultant of the dermatology clinic next day, who explained/confirmed the risks/chances regarding my case and only after that I was happy to wait.

    Don't be afraid to contact and ask questions to medical team, yes they are busy but they'll understand as they deal with people in our situation all the time. 

    X

  • I’m finding this discussion helpful as I also was diagnosed with 1a but worried about the time for WLE and checks and feel uneasy about being certain it has gone. Cry

  • Former Member
    Former Member in reply to Former Member

    Thank you .

    I’m sorry you find yourself here, too, and have been through some of the same worries.

    I will definitely follow up with the hospital  tomorrow. 

    When taking care of others I’m fierce about advocating for them, but somewhat conditioned to do the opposite for myself. I need to stop worrying about being a nuisance and start making a fuss. If it turns out it was a fuss about nothing, then happy day. 

    Take care,

    x

  • Former Member
    Former Member in reply to latchbrook

    Thank you  - Hugs much appreciated.

    And thank you for taking the time to reply and for your generosity on the forum.

    I’m sorry you’ve been through all this, too and it’s still ongoing for you.

    Hugging 

    x

  • Former Member
    Former Member in reply to Rob80

    Hello 

    I’m sorry to read about your diagnosis, too.

    It is very unsettling. It’s great to have been caught early but like you, I just want the WLE done and reassurance that as far as possible, all trace of The Thing is gone.

    I remember the feeling when my mum and later my husband were diagnosed with cancer. Life changed in that moment, time now defined by BD (before diagnosis) and AD (after diagnosis). It was never the same AD.

    Now to find myself on the receiving end of The Conversation, I am newly appreciative of what my loved ones experienced in that moment. For me the news is, relatively speaking, good. Yet on hearing the words ‘malignant’, and ‘cancer’, albeit early caught, I felt like a I’d been punched in the chest.

    There’s now an inner tussle going on between optimist me and scared me, which I think is probably entirely natural and to be expected. I’m trying to just sit with whoever is showing up in the moment, without judgement. 

    I hope you get your WLE appointment soon and can be reassured.

    Big hug and take care.

    x

  • Thanks for your reply. What you describe is just how I feel too. 
    sending love and strength x

  • Former Member
    Former Member in reply to Former Member

    Hi Luna21,

    I also had few of my closest loved ones diagnosed with cancer and I think I knew at some point that I might get it too. Not because of genetics, purely because cancer is something that is not so unusual do occur within someone's body, something I've learnt from my studies and profession over years. Trying to remember that and not to dwell why me feeling that comes sometimes. 

    Love the way you described how two different "me" shows up and trying not to judge either. Feeling exactly the same, sending good vibes your way!

    And yes don't be hesitant to contact your nurse/consultant. I think I've emailed them every week since my diagnosis to ask questions and progress for appointments. Don't know if they roll their eyes when they see my emails, but are always so kind and professional when they reply! 

    X