Immunotherapy Treatment

Hi yummymummyof3, I’m sorry your Dr and hospital haven’t been any help. I’m wondering if that means they didn’t suggest anything to you or if that means that what ever they suggested didn’t work. 

I know that I’ve looked at the Macmillan section on constipation at times, and the NHS site, mainly when due to shielding advise I wasn’t as active as normal. The drinking of at least 2 litres of water, eating fruit and veg, buying prunes just in case, moderate exercise etc

https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/bladder-and-bowel-problems

Colonic hydrotherapy I haven’t heard of, well perhaps vaguely on the tv. How did you come across that as an option ? Have you discussed that option with your team ? Not the same thing but my physio suggested a session of acupuncture once for a frozen shoulder and they weren’t keen on that idea due to risk of infection, and wanted things run past them.

I hope you sort things out.

They gave me stuff to clear my bowls but I finished it and it’s gone back to same as it was before. I got lot of poo back up so need it empty as nothing else has work. I have look it up and be told it might work 

Hi YummyMummy, if you aren't already, make sure you are eating a healthy diet with lots of fiber- vegetables especially. Avoid constipating foods. Your gut microflora are important in battling this melanoma. Hope this helps!

I been eating all the right stuff when I got appetite but I’m still suffer in pain around my whloe stomach. I’m going try and get some help tomorrow as it’s getting me down now 

I hope you get somewhere today with your team yummymummyof3

The way I’m feeling it’s be a&e as was in so much pain last night :( 

I’m sorry you were in so much pain. If you think it is a side effect of your treatment you will have an emergency number for your own hospital to call. If you do contact A&E make sure they know know what immunotherapy you are on. I have a card that I was told to carry with me at all times.

Just spoke to my care team and they said to carry on taking meds they giving me as will take a while so see how I go 

How are you feeling now ? I am about to start pembro …any tips

would be greatly received x 

Taking meds to help me so hopefully things will move along again as going be on them longer then before. The treatment it self is fine and everyone has a lovely. Just make sure you eat when you feel like you can’t and keep fluid going. I always go to bed early the day I have mine as it’s make me feel tired. Good luck