New here and new to using forums so please be patient as not sure if I am getting this right yet. due into hospital for first meeting on Tuesday. I know I have mantel cell but how do I get to know the grade etc please? Will they know after the Pet Scan...
Hi all, This is Andy, I am 57, live in NW London and was diagnosed with stage 4 mantle cell lymphoma in September '23. I received 6 R-CHOP chemotherapy treatments and my From September '23 to March '24 all I knew was hospitals, tests, chemo, injections...
After 5 weeks in hospital and two full blood transfusions, numerous tests, being poked, prodded, jabbed with too many needles and a then a bone marrow biopsy, I was diagnosed with stage 4 mantle cell lymphoma - a rare and very aggressive blood cancer...
Hi I recently had the results of my P.E.T. Scan given to me by my consultant .It showed my cancer has shrunk and I will be put on a new regime of 8weekly doses of Rituxamub .Has anyone else had this and how did you get on.
Hi my names Tony I’m 61 years old .I was diagnosed with stage 4 MCL in March this year ,and just finished RChop chemotherapy treatment .I have had a PET scan and awaiting the results .I like to think I’m fairly fit for my age being a non smoker and playing...
Inceasing pain after chemo? Especially after 8 years. But glad to say still in remission. I have pain especially in my wrists and fingers and general muscle and joints, which is increasing year on year, after chemo, has anyone else experienced this...
Hi all, I know each case is different, but what is the longest anyone has been on ‘Watch and Wait’ following initial diagnosis? Cheers
Hey, I just got diagnosed with mantle cell lymphoma, alot to take in, it's low grade atm but my main symptom is fatigue, anyone else have this and if so any tips to boost energy levels? Kinda floors me and I'm not one to sit about, always on the go. ...
I was diagnosed with stage 2 MCL January 23 and was about to start Chemoimmunotherapy (Nordic) when my team changed their mind and decided Watch & Wait. I still have not started any treatment and have had over a year of feeling ok while the cancer progresses...
Hi my name is sue I'm 63 and was first diagnosed with Idolent mantle cell lymphoma in 2021 which resulted I me having a splenectomy early 22..was monitored but unfortunately the disease decided to come back very aggressive so only 20mths remission. ...
