new here any help please

Hi spiritlady I can see why you feel like a ticking bomb.  Your doctors must be confident that it is slow growing enough that it isn't going to do you any harm if they wait and keep an eye on it.  Have they told you what they are waiting for though as I imagine that would be helpful to know.  It could be they think it won't ever grow to a point where it will cause you any problems.

I'm in sort of a similar situation but with breast cancer.  I had a lump removed but then at my 1 year review they noticed some tiny calcifications (all 1mm or less in size).  They tried to get a biopsy on two separate occasions but the calcifications were so small that the pathologist couldn't find them to check them for cancer.  So like you I was told that we have to wait and keep an eye on them and see what happens. They think it's unlikely to be anything but once bitten twice shy.  So yes feels a bit like a ticking time bomb although I've got used to the idea of it now and had forgotten about it till I read your post.

As time passes hopefully you too will think about it less and less.

Wishing you all the best with it all.

Hi again spiritlady and well done navigating across to this corner of the community.

As I said in my reply to your post in the New to Community I was diagnosed way back in 1999 with another type of slow growing, but incredible NHL…… but I am still here 22 years and counting living as normal a life that any other 66 year old is living.

Active Monitoring (watch and wait) is often suggested. it means it is in your best interests to keep an eye on your lymphoma and to save treatments for when they are needed.

There is lots of evidence that people do just as well in the long term if they are actively monitored and have treatments kept until they are really needed.

Do also check out Lymphoma Action, a small but very active UK Lymphoma Specific Charity who have lots of good information, videos and run regular regional online Lymphoma Online Support Groups and indeed a very great Lymphoma Buddy Service where you can be linked up with someone who has walked the same treatment journey.

Akways around to chat and help you make sense of this ((hugs))