hi folks, was diagnosed on 15th oct after a tumour was found in my bowel. sine i had a pet scan i was told friday its in my, throat,chest and spleen. I start chemo on Tuesday and will be having a stem cell transplant after all my chemo. i know the words treatable and intent to cure are good positive words, but is it normal to have negative thoughts? just cant seem to get the worse case scenario out my thick yorkshire head. Hopefully i can give myself a good talking to and start tyo feel positive
good luck all and stay safe
yorky
Hi yorkybrom and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike Thehighlander and I help out around our blood cancer groups.
I don’t have Mantle Cell NHL but was diagnosed way back in 1999 with a rare, incurable but treatable type of low grade skin NHL Stage 4a and although my Lymphoma ‘type’ is different I understand this journey rather well unfortunately.
Negative thoughts are normal - you have cancer, you cant hear treatable with an intent to cure........ believe it.
As I said my type of NHL is incurable but I am now 5 years in remission, amazing in that back in 1999 I was told I would never see any long term remission.
There are many treatments used. but as you are heading into Stem Cell Transplant (SCT) the treatment you will have is a stepping stone for getting you into the position for going into SCT...... I know this journey rather well as I have had two Allo (donor) SCTs...... save me telling you a rather long story you can hit my community name Thehighlander and see my story.
SCT is a challenging but amazing treatment so support and understanding is very important so can I recommend you also join our dedicated Stem cell transplant group as you will connect with others who have been there and done it.
Happy to talk more on here or in the SCT Group.
