Hi all
I was diagnosed with MCL in March this year and have been watching and waiting since, but my treatment will start this week. I will be undergoing the Nordic Protocol - Rituximab plus Maxi CHOP alternating with Cytarabine, followed by a SCT. I would welcome any words of wisdom or advice from any of you who have been through this.
Thanks
Deborah
Hi Deborah and welcome to the Mac Community.
There are a number of folks who have had these treatments (I did not as I had a different type of NHL) so let’s look for them to pick up on your post.
These are some useful links for you to have a look at
Nausea, remember not to suffer in silence when it comes to nausea there are lots of tools available - but your team need to know how you are getting on.
Fatigue may well build up over time so take each day as it comes but at the same time keep some activity going as this does actually help overcome some of the fatigue.
Avoiding Infections obviously is very important but you will totally get this during these challenging times.
I would also highlight the importance of drinking lots of water as this will flush out all the toxins released by the chemo and protects your kidneys.
However I did have two Allo (donor) Stem Cell Transplants (SCT) (June 2014 and Oct 2015)
I would recommend that you join and post in our dedicated Stem Cell Transplant group as these treatments are often used as a precursor to SCT and as SCT is a rather demanding treatment but talking with others who have walked the walk will help a lot.
We are around to help as best as we can.
